State EI and ECSE programs are working together to share more data and information with each other and other programs to support effective service delivery. This document offers considerations for entering into a data sharing agreement (DSA), as well as recommended actions for creating and implementing a DSA. It also outlines key differences between a […]
Tag Archives: Personally Identifiable Information (PII)
Statewide Data Integration Initiatives: IDEA Part C and FERPA Considerations
Have you been approached about having your Part C program participate in a statewide integrated data system initiative, such as an ECIDS or SLDS? Or is your program’s participation already in the works?
Unlocking Early Childhood Data Privacy: Latest Trends and Insights and What You Need to Know
September 11, 2024. Recording now available. An engaging discussion on how the latest policy and data trends affect how States safeguard privacy.
Navigating IDEA and FERPA To Protect Privacy in Today’s Early Childhood World
September 22, 2023. This webinar will discuss the protection of personally identifiable information (PII) and data sharing from the standpoint of IDEA and Family Education Rights and Privacy Act (FERPA) requirements. Topics important to privacy such as – confidentiality, participating agencies, data sharing, access, records, parental consent, increased use of technology in communication and telehealth options will be addressed.
Data Governance Webinar: How Prepared Are You?
October 3, 2022 Presenters: Bruce Bull & Nicholas Ortiz As state agencies increasingly use data for multiple purposes, data governance becomes essential to ensure that clear policies and procedures are in place to protect the integrity and security of the data. This webinar covered: Understanding how to assess your state’s data governance status Reviewing scenarios […]
Linking EHDI and Part C Data Webinar
August 28, 2019 This interactive webinar highlights stories from Part C Coordinators who have or are developing collaborative data sharing agreements that allow them to share Part C data with their Early Hearing Detection and Intervention Program (EHDI). This webinar also allows participants to express their challenges and/or issues and as a group and brainstorm […]
Data Breach of Personally Identifiable Information
Authors: Denise Mauzy, Bruce Bull, and Haidee Bernstein, DaSy I just learned about two different data breaches! I know my state needs to strengthen our data breach polices and hold privacy trainings! The first incident was in a small rural jurisdiction. They released a data report highlighting the great progress their children have made. Although […]
Informed & Ready: Questions Part C and Part B 619 Program Leaders Should Ask About an Early Childhood Integrated Data System
This 2017 brief discusses the benefits for Part C and Part B 619 program leaders of participating in an ECIDS, explores some of the questions that these leaders need to ask as part of deciding whether to contribute data to their state’s ECIDS, and recommends additional resources. It is designed to help programs reap maximum […]
Health Insurance Portability and Accountability Act (HIPAA) Frequently Asked Questions
This 2016 document provides an orientation to the Health Insurance Portability and Accountability Act (HIPAA) for Part C and Part B 619 agencies, programs, and service providers. Through answering frequently asked questions DaSy receives about HIPAA, the document highlights aspects of HIPAA most relevant to IDEA early childhood programs. By The DaSy Center Please note: […]
Data Linkages Between Part C and Part B – Transition Notification
This 2016 state spotlight describes how Kansas and Wisconsin implemented changes to their data systems and program practices to meet new IDEA notification requirements for the transition from Part C to Part B. It also provides implications for other states’ consideration to promote effective and responsive transition for children with disabilities and their families. By […]

