An overview of developing data sharing agreements, including challenges and strategies from selected states, presented at the 2020 Early Hearing Detection and Intervention Conference. Presenter: Haidee Bernstein Developing Data Sharing Arrangements Between Part C and EHDI To Improve Early Identification and Services
The U.S. Department of Education and the Office for Civil Rights at the U.S. Department of Health and Human Services released updated joint guidance addressing the Family Educational Rights and Privacy Act (FERPA) and the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule to records maintained on students.
August 28, 2019 This interactive webinar highlights stories from Part C Coordinators who have or are developing collaborative data sharing agreements that allow them to share Part C data with their Early Hearing Detection and Intervention Program (EHDI). This webinar also allows participants to express their challenges and/or issues and as a group and brainstorm […]
This 2016 brief promotes formal data governance for Part C data by describing lessons learned from other industries; outlining the risks of informal data governance and benefits of formal data governance; and providing action steps to support state Part C systems in establishing or improving formal data governance. By Denise Mauzy, Bruce Bull, & Tate […]
This 2016 document provides an orientation to the Health Insurance Portability and Accountability Act (HIPAA) for Part C and Part B 619 agencies, programs, and service providers. Through answering frequently asked questions DaSy receives about HIPAA, the document highlights aspects of HIPAA most relevant to IDEA early childhood programs. By The DaSy Center Please note: […]
Conference: Early Childhood Privacy and Confidentiality Workshop Date: February 2015 Presenters: Baron Rodriguez, Frank Miller, Joyce Popp, Sharon Walsh, Robin Nelson, & Missy Cochenour This presentation is focused on the privacy and security of data in the early childhood sector. State teams were invited to participate in an all-day training where they learned about FERPA […]