State EI and ECSE programs are working together to share more data and information with each other and other programs to support effective service delivery. This document offers considerations for entering into a data sharing agreement (DSA), as well as recommended actions for creating and implementing a DSA. It also outlines key differences between a […]
Tag Archives: HIPAA
Developing Data Sharing Arrangements
Conference: Early Hearing Detection and Intervention Conference Date: March 2020 Presenter: Haidee Bernstein An overview of developing data sharing agreements, including challenges and strategies from selected states, presented at the 2020 Early Hearing Detection and Intervention Conference. Developing Data Sharing Arrangements Between Part C and EHDI To Improve Early Identification and Services
FERPA and the Coronavirus Disease 2019 (COVID-19)
The U.S. Department of Education has provided answers to questions that school officials may have had concerning the disclosure of personally identifiable information from students’ education records to outside entities when addressing the Coronavirus Disease 2019 (COVID-19).
Joint Guidance on the Application of FERPA and HIPAA to Student Health Records
The U.S. Department of Education and the Office for Civil Rights at the U.S. Department of Health and Human Services released updated joint guidance addressing the application of the Family Educational Rights and Privacy Act (FERPA) and the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule to records maintained on students.
Linking EHDI and Part C Data Webinar
August 28, 2019 This interactive webinar highlights stories from Part C Coordinators who have or are developing collaborative data sharing agreements that allow them to share Part C data with their Early Hearing Detection and Intervention Program (EHDI). This webinar also allows participants to express their challenges and/or issues and as a group and brainstorm […]
Informed & Ready: Questions Part C and Part B 619 Program Leaders Should Ask About an Early Childhood Integrated Data System
This 2017 brief discusses the benefits for Part C and Part B 619 program leaders of participating in an ECIDS, explores some of the questions that these leaders need to ask as part of deciding whether to contribute data to their state’s ECIDS, and recommends additional resources. It is designed to help programs reap maximum […]
Avoid the Pitfalls: Benefits of Formal Part C Data System Governance
This brief promotes formal data governance for Part C data by describing lessons learned from other industries; outlining the risks of informal data governance and benefits of formal data governance; and providing action steps to support state Part C systems in establishing or improving formal data governance. By Denise Mauzy, Bruce Bull, & Tate Gould […]
Health Insurance Portability and Accountability Act (HIPAA) Frequently Asked Questions
This 2016 document provides an orientation to the Health Insurance Portability and Accountability Act (HIPAA) for Part C and Part B 619 agencies, programs, and service providers. Through answering frequently asked questions DaSy receives about HIPAA, the document highlights aspects of HIPAA most relevant to IDEA early childhood programs. By The DaSy Center Please note: […]
Lessons Learned from Developing Data Sharing Agreements
This 2015 webinar shares common challenges and pitfalls in developing data sharing agreements, as well as effective strategies and best practices for developing these agreements. Presented by Baron Rodriguez, Sharon Walsh, Jill Singer, & Nicholas Ortiz in September, 2015 Webinar Presentation Webinar Recording
2015 Early Childhood Privacy and Confidentiality Workshop
Conference: Early Childhood Privacy and Confidentiality Workshop Date: February 2015 Presenters: Baron Rodriguez, Frank Miller, Joyce Popp, Sharon Walsh, Robin Nelson, & Missy Cochenour This presentation is focused on the privacy and security of data in the early childhood sector. State teams were invited to participate in an all-day training where they learned about FERPA […]
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