You can’t have data quality without data governance. And data governance is complex and complicated—but it doesn’t have to be this way.
Getting Started: Where Does Your Agency’s Existing Data Governance Live?
Tag Archives: Data Privacy and Confidentiality
Developing Data Sharing Arrangements between EHDI and Part C to Improve Early Identification and Services
Conference: Early Hearing Detection and Intervention Conference Date: March 2022 Presenters: Haidee Bernstein, Karl White, Evelyn Shaw, Sharon Walsh The goal of this session was to help participants (1) Increase their understanding of the privacy requirements (e.g., under IDEA, FERPA and HIPAA) and important technical aspects needed to address data sharing, (2) Gain knowledge of data […]
Impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families
To address the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families, NCHAM has gathered information from various states regarding how they facilitate the exchange of information with other EHDI stakeholders.
Data Governance Toolkit
This DaSy toolkit contains information, guidance, and templates to assist Part C and Part B 619 program staff with creating or enhancing their data governance policies and procedures. For each data governance topic, an overview, consideration questions, and a fillable Microsoft Word template is provided.
Data Governance Checklist
This 2011 checklist is designed to assist stakeholder organizations with establishing and maintaining a successful data governance program by summarizing the key data privacy and security components of such a program and listing specific best practice action items. Published by: Privacy Technical Assistance Center (PTAC) Data Governance Checklist
FERPA and the Coronavirus Disease 2019 (COVID-19)
The U.S. Department of Education has provided answers to questions that school officials may have had concerning the disclosure of personally identifiable information from students’ education records to outside entities when addressing the Coronavirus Disease 2019 (COVID-19).
Joint Guidance on the Application of FERPA and HIPAA to Student Health Records
The U.S. Department of Education and the Office for Civil Rights at the U.S. Department of Health and Human Services released updated joint guidance addressing the application of the Family Educational Rights and Privacy Act (FERPA) and the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule to records maintained on students.
Linking EHDI and Part C Data Webinar
August 28, 2019 This interactive webinar highlights stories from Part C Coordinators who have or are developing collaborative data sharing agreements that allow them to share Part C data with their Early Hearing Detection and Intervention Program (EHDI). This webinar also allows participants to express their challenges and/or issues and as a group and brainstorm […]
Confidentiality Toolkit
This resource tool from the U.S. Department of Health and Human Services’ Administration for Children and Families (ACF) supports state and local efforts by bringing greater clarity to the rules governing confidentiality in ACF and certain related programs by providing examples of how confidentiality requirements can be addressed and met in a manner fully consistent […]
Linking It All Together: Ready, Set, Go!
This third of three mini-webinars presented during Linking Week 2017, reviewed lessons learned from the week and shared resources and supports that address specific data linking needs. Presented by Sharon Walsh, Duane Brown, Bruce Bull, & Baron Rodriguez in May 2017 Webinar Recording Webinar Presentation