State EI and ECSE programs are working together to share more data and information with each other and other programs to support effective service delivery. This document offers considerations for entering into a data sharing agreement (DSA), as well as recommended actions for creating and implementing a DSA. It also outlines key differences between a […]
Tag Archives: Data Privacy and Confidentiality
Statewide Data Integration Initiatives: IDEA Part C and FERPA Considerations
Have you been approached about having your Part C program participate in a statewide integrated data system initiative, such as an ECIDS or SLDS? Or is your program’s participation already in the works?
Unlocking Early Childhood Data Privacy: Latest Trends and Insights and What You Need to Know
September 11, 2024. Recording now available. An engaging discussion on how the latest policy and data trends affect how States safeguard privacy.
Data Governance Toolkit
This DaSy toolkit contains information, guidance, and templates to assist Part C and Part B 619 program staff with creating or enhancing their data governance policies and procedures. For each data governance topic, an overview, consideration questions, and a fillable Microsoft Word template is provided.
Navigating IDEA and FERPA To Protect Privacy in Today’s Early Childhood World
September 22, 2023. This webinar will discuss the protection of personally identifiable information (PII) and data sharing from the standpoint of IDEA and Family Education Rights and Privacy Act (FERPA) requirements. Topics important to privacy such as – confidentiality, participating agencies, data sharing, access, records, parental consent, increased use of technology in communication and telehealth options will be addressed.
IDEA and FERPA Crosswalk
This 2022 document from the U.S. Department of Education is a side-by-side comparison of the legal provisions and definitions in IDEA Part B, IDEA Part C and FERPA. It is intended to help differentiate these statutes and provide a comparisons for the shared definitions.
Data Governance Webinar: How Prepared Are You?
October 3, 2022 Presenters: Bruce Bull & Nicholas Ortiz As state agencies increasingly use data for multiple purposes, data governance becomes essential to ensure that clear policies and procedures are in place to protect the integrity and security of the data. This webinar covered: Understanding how to assess your state’s data governance status Reviewing scenarios […]
Getting Started: Where Does Your Agency’s Existing Data Governance Live?
You can’t have data quality without data governance. And data governance is complex and complicated—but it doesn’t have to be this way.
Developing Data Sharing Arrangements between EHDI and Part C to Improve Early Identification and Services
Conference: Early Hearing Detection and Intervention Conference Date: March 2022 Presenters: Haidee Bernstein, Karl White, Evelyn Shaw, Sharon Walsh The goal of this session was to help participants (1) Increase their understanding of the privacy requirements (e.g., under IDEA, FERPA and HIPAA) and important technical aspects needed to address data sharing, (2) Gain knowledge of data […]
Impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families
To address the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families, NCHAM has gathered information from various states regarding how they facilitate the exchange of information with other EHDI stakeholders.

