To address the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families, NCHAM has gathered information from various states regarding how they facilitate the exchange of information with other EHDI stakeholders.
Tag Archives: Data Privacy and Confidentiality
Data Governance Checklist
This 2011 checklist is designed to assist stakeholder organizations with establishing and maintaining a successful data governance program by summarizing the key data privacy and security components of such a […]
FERPA and the Coronavirus Disease 2019 (COVID-19)
The U.S. Department of Education has provided answers to questions that school officials may have had concerning the disclosure of personally identifiable information from students’ education records to outside entities when addressing the Coronavirus Disease 2019 (COVID-19).
Joint Guidance on the Application of FERPA and HIPAA to Student Health Records
The U.S. Department of Education and the Office for Civil Rights at the U.S. Department of Health and Human Services released updated joint guidance addressing the application of the Family Educational Rights and Privacy Act (FERPA) and the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule to records maintained on students.
Linking EHDI and Part C Data Webinar
August 28, 2019 This interactive webinar highlights stories from Part C Coordinators who have or are developing collaborative data sharing agreements that allow them to share Part C data with […]
Confidentiality Toolkit
This resource tool from the U.S. Department of Health and Human Services’ Administration for Children and Families (ACF) supports state and local efforts by bringing greater clarity to the rules […]
Linking It All Together: Ready, Set, Go!
This third of three mini-webinars presented during Linking Week 2017, reviewed lessons learned from the week and shared resources and supports that address specific data linking needs. Presented by Sharon […]
Stay on the Linking Path: Don’t Forget Privacy
This second of three mini-webinars presented during Linking Week 2017, featured guidance from the Privacy Technical Assistance Center (PTAC), as well as lessons learned from North Carolina on ensuring privacy […]
Early Childhood Data Privacy resources
The U.S. Department of Education’s Privacy Technical Assistance Center (PTAC) has developed a collection of early childhood data privacy resources. View Early Childhood Data Privacy Resource List
A Little Privacy Please? Safeguarding the Privacy of Young Children with Disabilities under IDEA and FERPA
This webinar featured privacy and legal experts from the U.S. Department of Education discussing answers to frequently asked questions related to privacy and confidentiality for IDEA early childhood programs. This […]