Privacy and Confidentiality – Special Collection

The use of quality early intervention and education data enables policymakers, administrators, educators, service providers and parents to design and implement effective practices to improve child and family outcomes. While the benefits of data use are clear, there are growing concerns about the scope and type of child data collected, as well as the protection and sharing of those data. This page provides resources, including federal guidance, on practices and policy regarding the privacy and confidentiality of early childhood data.

Resources from the U.S. Departments of Education and Health & Human Services

Relevant Federal Privacy & Confidentiality Regulations

FERPA Regulations
IDEA Part B Regulations
IDEA Part C Regulations

Guidance, Memos, & Policy Letters

Resources from ED-Funded Technical Assistance Centers


Data Sharing

Data Security & Access

Data Governance

  • Data Governance ChecklistData Governance Checklist
    This 2011 checklist is designed to assist stakeholder organizations with establishing and maintaining a successful data governance program by summarizing the key data privacy and security components of such a ...
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  • Avoid the Pitfalls: Benefits of Formal Part C Data System GovernanceAvoid the Pitfalls: Benefits of Formal Part C Data System Governance
    This 2016 brief promotes formal data governance for Part C data by describing lessons learned from other industries; outlining the risks of informal data governance and benefits of formal data ...
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  • Data Governance Demystified: Concepts to RealityData Governance Demystified: Concepts to Reality
    Presenters: Bruce Bull, Sharon Walsh, Denise Mauzy, Christy Cronheim, Rick Harris, & Maria Synodi This 2014 presentation focuses on the role of Data Governance in protecting data and facilitating improved ...
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  • Data Governance and StewardshipData Governance and Stewardship
    This 2011 brief provides guidance on how to successfully manage complex data systems by establishing a comprehensive data governance approach. Data governance principles discussed in this paper apply to a ...
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For more resources on data privacy and confidentiality please visit the Privacy Technical Assistance Center (PTAC). Funded by the U.S. Department of Education, PTAC provides resources for education stakeholders to learn about data privacy, confidentiality, and security practices related to student-level longitudinal data systems. PTAC partners with DaSy on privacy issues related to IDEA Part C and Part B 619.