Special Collections » Data Linking and Integration

Formalizing Data Linking – Resources

• Memorandum of Understanding Between the State Agency Under the Individuals with Disabilities Act (IDEA) and the State Autism Developmental Disabilities Monitoring Program (State ADDM) (Dept. of Ed./CDC, 2024)

  This document provides an example memorandum of understanding (MOU) that can used between the State Agency under the Individuals with Disabilities Act (IDEA Part B,619 and Part C) and the State Autism Developmental Disabilities Monitoring Program (State ADDM) funded by the Center for Disease Control.

• Partnering for Success: Key Elements of Effective ECIDS Data Governance (SLDS State Support Team, 2024)

  In this webinar, representatives from Kansas and South Carolina will share how they have worked to establish overarching goals and plans for the governance of their ECIDS.

• Statewide Data Integration Initiatives: IDEA Part C and FERPA Considerations (DaSy, 2024)

  This DaSy blog discussed the data privacy requirements under the Individuals with Disabilities Education Act (IDEA) and the Family Educational Rights and Privacy Act (FERPA).

• Data Sharing Agreement Checklist: Early Hearing Detection, and Intervention Program (EHDI) and Part C (DaSy/ECTA/NCHAM, 2023)

  This checklist was developed by the EHDI Outcomes Committee as a resource for state Part C and EHDI staff to use as they develop Data Sharing Agreements, consistent with the federal requirements under the Individuals with Disabilities Education Act (IDEA) and Family Education Rights and Privacy Act (FERPA).

• Developing Data Sharing Agreements (DaSy/EDHI, 2020)

  This overview, presented at the 2020 Early Hearing Detection and Intervention Conference, focuses on the development of data sharing agreements, including challenges and strategies from selected states.

• Linking EHDI and Part C Data (DaSy/ECTA, 2019)

  This interactive webinar highlights stories from Part C Coordinators who have or are developing collaborative data sharing agreements that allow them to share Part C data with their Early Hearing Detection and Intervention Program (EHDI).

• Stay on the Linking Path: Don’t Forget Privacy(DaSy/PTAC, 2017)

  This second of three mini-webinars presented during Linking Week 2017, featured guidance from the Privacy Technical Assistance Center (PTAC), as well as lessons learned from North Carolina on ensuring privacy and confidentiality when linking.

• Avoid the Pitfalls: Benefits of Formal Part C Data System Governance (DaSy, 2016)

  This brief promotes formal data governance for Part C data by describing lessons learned from other industries

• Early Childhood Privacy and Confidentiality FAQ (OSEP, 2016)

  This OSEP guidance document provides responses to frequently asked questions to facilitate and enhance states’ implementation of IDEA privacy and confidentiality provisions.

• Data Sharing Agreement Checklist for IDEA Part C and Part B 619 Agencies and Programs (DaSy/PTAC, 2014)

  This checklist summarizes the requirements for the written agreements under the audit or evaluation exception that is specified in FERPA and that also applies to the IDEA for Part C early intervention and Part B 619 preschool special education.